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Welcome to The 25% M.E. Group Website
Support Group for Severe M.E. Sufferers

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Welcome to the 25% ME Group Severe ME Day web page. Below are Quick Links for this Page.

Remembrance PRESS RELEASE

Leaflet for Understanding and Remembrance Day

How to Help Someone with Severe Myalgic Encephalomyelitis

Web A5 REMEMBRANCE DAY Leaflet

Emily Collingridge story

Linda Crowhurst story

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aug8th

A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.

Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.

A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.

People with Severe ME are far too hidden awaysevereday

..at last a day on which we can make our physical reality, our physical neglect and our needs known .

Remember us, remember them. Let that be our motto for the day. We are severely ill and we are here .

ME is a World Health Organisation classified Neurological Disease, with serious multi-system dysfunction. People who suffer from it severely are house and bed-bound. They experience paralysis, pain, muscle dysfunction, dysautonomia, acute noise and light sensitivity, gastric issues; profoundly affected by the environment, they need to live lifes of almost total isolation in order to cope.

The rainbow has been chosen as the emblem for this day in order to symbolise a bridge from ignorance to knowledge. The many colours of the rainbow represent the fact that ME does not discriminate and also it is an illness of many layers. The rainbow bridge also helps us to remember those who have lost their lives to this disease and to honour their memory.

We need this special day

This is a new day especially for the ones most neglected and unseen.

A day for to speak out and raise funds..

logo..for those of us who are shut away from ordinary living, in darkened rooms, too noise sensitive to have direct contact with others, too ill to sit up or move, paralysed, shaking with massive physical spasms, in agony on every level, experiencing burning, throbbing, screaming, tortuous levels of pain, unable to eat, unable to swallow, unable to fundamentally live in the normal ways of the world.

A day for focus

sophia

We are launchig an 'official' day solely connected to Severe ME, on Sophia Mirza's birthday : 8th August. Sophia who had true severe Myalgic Encephalomyelitis, was treated outrageously by the medical profession and by others in healthcare. What happened to Sophia should never be forgotten and so it would mean a great deal to use her birth date to honour her memory and to help others.

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