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Notices 2007
If you wish to put a notice onto the board, click the following: To reply to a notice on the board, click the 'Email Webmaster' at end of each message and also place the word 'Notice' and date of the notice, as it appears next to the message, into the 'Subject' line. Thanks
10th October 'I am posting concerning a close relative. She suffers from ME and has tried unsuccesfully to claim DLA. She has appealed against the decision and has now just lodged a further appeal. She has been trying to deal with the appeal herself but I feel she needs more support from somone who can either assist her with the appeal or may be able to offer some personal experiences of how they won their own DLA appeal. I know some doctors do not believe ME exists. Her own doctor was not particulary helpful with supporting her claim for DLA. This was not because ME does not affect my relative, but more to do with my relative just gets on with it and is not always complaining to the doctors. The doctor does not totally understand how the illness effects my relative so placed a lot of guess work in the report. My relative lives in Cheshire and is on a low wage. Can anyone offer any specific advice on the best way to go about the appeal. Has anyone any personal experience. Does anyone know of any specialist solicitors or welfare rights advisors that have dealt with people with ME previously. Please feel free to email if you may be able to help: Thanks in advance.' 11th June 2007 I look after my daughter who is 17, she has been bedbound with M.E, for 21 months and had M.E. for 10 years. If anyone is in a similar situation and would like to e-mail me to exchange help, ideas and support, I would be pleased to hear from you. Marian Lang mariango60@yahoo.co.uk
12th February 07 ABACA ORGANIC MATTRESSES - has anyone purchased one of these mattresses and, if so, how good were they? I have severe ME and MCS. If anyone has purchased a natural latex mattress, did it cause you any problems, especially if you also have MCS. Please send any replies or information to webmaster@25megroup.org Enquiry by Joy
16th Jan 07 I have heard that Nimodipine/Nimotop is sometimes prescribed for ME, especially in the US (it is supposed to help with brain fatigue/fogginess). I would like to know if anyone has tried Nimodipine, and if so, has it helped? Also, I live in Holland and Nimodipine can't be prescribed by Dutch doctors. In the ME 25% group magazine someone mentioned a Scottish doctor who prescribes Nimodipine for ME patients. Does anyone have the name and address of this doctor? Or of any other doctor whom I could contact about this? Many thanks, REPLY TO: Judith (email: judithwilkinson@hetnet.nl)
8th January 2007 ISO contact with others suffering from angina, cardiomyopathy, and other cardiac dysfunction. I will be having an angiogram in the next few weeks following a recent heart attack in November. Would like to exchange info and tips and advice. Please email furstc@hotmail.com Looking forward to hearing from you. Chantal |
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Copyright © 2004 The contents of these webpages are copyright. Last updated 12 February 2007 |
